Talking with Allison the other night around the fire she confided in us that when she was first diagnosed and so sick she really believed she was going to die. :( Makes me sad to think she thought that. It was a scary time for all. We were telling her about MAS (microphage activation syndrome) that can effect kids who are diagnosed with Systemic JRA and that it can lead to death at times. She told us she was glad we never told her about that because she was scared enough without knowing about MAS.
Our journey with jar continues and thankfully God has blessed Allison to be in good health right now. We do not take that for granted and feel blessed each day she feels good. Especially when there are so many kiddos out there that suffer so much daily with their symptoms from this terrible disease. A cure must be found!!!