Wednesday, September 24, 2008

A Blip

Yes, we had a little "Blip" in Allison's progress.  We got a little less boring last night.  Allison went to Robotics after school, piano lessons and helped to wash the van.  Suddenly, she was complaining of her ankle hurting, that quickly changed to limping and then crawling on the floor because it hurt too much to put pressure on it.  When John looked at it her ankle was noticeably swollen and painful to touch.  So we put ice on it and gave her some Aleve.  At bedtime she was unable to put any weight at all it and John had to carry her up to bed.  We were very concerned because yesterday we had dropped her prednisone from 7 mg to 6 mg. Had this slight change pushed her into a flare???  

Luckily we have some wonderful jra angels (Moms with kids who have jra) who are so supportive and always there for us.  We were encouraged to wait it out and see if it might just be a slight reaction to the lowering of her prednisone.  Put our minds a little at ease. 

This morning it was still swollen but looked a little better and she was limping around the house.  We gave her more Aleve and tried moist heat this morning.  She went to school and when she came home in the afternoon said, "it was all good."  No pain, no issue!!  She actually said when she got to school and started walking on it more it was like her ankle loosened up and felt better.  Whew!!  

So, what does this mean?  Could be nothing or it could mean that as she weans off the prednisone more she may experience swelling and pain here and there in her joints.  Hopefully no fevers.  A friend on a web message board whose son is systemic like Allison said that when her son was weaning off he would have "little flares" with each drop in prednisone.  So, that is our little "Blip" that jumped onto the screen.  Keep Allison in your prayers and thoughts that those "Blips" stay to a minimum. 
Thanks for checking in,

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