We asked him about side effects of taking mtx long term and there are none. This drug has been used for over 20 years treating jra and he didn't know of any long term concerns so that was a relief to us.
So, as she is weaning we will be watching her for breakthrough symptoms and if she catches a cold or virus to see if she has a flare up of arthritis with it on the lower dose of mtx. If she should flare that will tell us the mtx. is controlling the jra not that she has out grown it. Dr. Kingsbury was quick to point out even if we find it is the mtx. that is controlling the jra that is still a good thing and no reason to be discouraged. So, we continue the wait and see. Allison is excited at the possibility she might have out grown this disease that at first seemed like it would be something she would have to deal with life long.
Systemic jra is so scary at the beginning ( not that the other types aren't) with the rashes and high fevers but then it also is the one where after a year some kids just out grown it. I find that interesting.
As we drove to Portland we looked over the huge notebook of info we had documented on Allison over the last year and it was emotional to look at where we started, what we have gone through and were we are today. We recognize we were so blessed to have wonderful, wise doctors here in Albany that reacted quickly to her symptoms and started thinking jra early so that Allison could get to a specialist in Portland quickly. We had wonderful angels that were put into our path that intercepted and reached out to us to guide us to the Pediatric Rheumy. Doctor in Portland that we need to get Allison to so she could get symptom relief. Looking back I can see clearly how God placed people along our journey to lead and guide us through this forest called juvenile rheumatoid arthritis. We also know that with out our family and friends and especially church family who so many have spent hours praying for Allison we would not be in this good place we are today. I only hope we can return the favor to others whose kids are effected by this disease.
Jump for Joy for Allison tonight!!