Sunday, June 15, 2008

WOW!! Hard to believe

Well, the prednisone is an amazing drug.  As a friend whose daughter has systemic jra said to us, "It is a love/hate drug."  Well, right now we are experiencing the love.  It is like we have our daughter back again!  I can't believe how quickly it has taken effect in her.  Yesterday, Allison and I went shopping for about 4 hours.  We took a few breaks to rest but we walked and shopped and just had a great time.  For her to be in a store 30 minutes has been pushing it until now.  Last night we all at dinner together. Most evenings by dinner Allison is feeling so tired and in so much pain she eats lying on the couch.  We all sat at the table outside together and enjoyed the weather and Allison being with us and feeling good.  She was up until about 9:30 and feeling just great, smiling at bedtime (definitely not the norm).  No pain, no exhaustion.... it is almost scary.  We know there are side effects we have to be cautious of with this medication but, I can't even tell you how happy we are to see her enjoying life again and just being a kid. 

We are praying for minimal side effects and that once we start to taper it will not be too difficult for her.  It will be nice for her to be able to enjoy the summer and great since we are headed to the JRA conference and Disneyland in a few weeks.  

Thanks to all of you for your prayers and concern for Allison.  We really appreciate you all.

4 comments:

Erika said...

That is so awesome!! I am so glad its working! ABSOLUTELY FANTASTIC!! I wish I could come shop with you all for 4 hours, that sounds like fuN :)

For us, we noticed the "roid rage" in Charlotte (age 2 so whats "TWO" & what's "roid rage" was seriously hard to know) when she ate - she ate a lot during this period, and her cheeks got a little puffy, but it went down quickly after we weaned off. So it comes & it does its work, that's the most important!!!

I am so happy that she's feeling SO much better!!! Been thinking about you all!! Have a fantastic week :)

Steph said...

It was great to see Allison her old self last night when we visited. She was happy and bubbily and laughing. And finally she has color in her cheeks! Yay! Kathleen was so thrilled Allison could play with her again. Night and day from Allison on Friday.

Florence said...

Allison & Family,
I'm sooo happy to hear that the Prednisone is helping out so much! I'm going to pray, pray, pray that your side effects are minimal.
That quilt is BEAUTIFUL! I was able to click on the photos and see them up close, wow, your friends and teacher did a wonderful job. And pinwheels are one of my favorite quilt patterns.
Looking forward to hearing about your Disneyland trip too! Love to your Mom and Dad...
Thinking of you!
Florence

beachbirdie said...

Allison,

I am so happy you are feeling better! I will pray you can have lots of fun this summer without having to be sick!

Your new doctor sounds very nice!